Meet the children and their families.
The following families give a glimpse into living with MSD. They openly share how it felt to receive their MSD diagnosis, and the struggles they face as families fighting this terrible disease. Please take a few moments to read their stories. We need your help today to #CUREMSD!
“Live in the moment; make happy memories; keep smiling; don’t dwell on the past and don’t over-think the future, just take a day at a time. Life is a tapestry and you can choose to look at the back and see the chaos of you can look at the front and see the utter beauty. When someone you love becomes a memory, the memory becomes a treasure.”
“Since we have met and contact with other MSD families, we all have hope that one day we will wake up, get a message or phone call from a doctor that a treatment or a cure is available. This will be the day that all our problems will come to an end and we will finally be able to live like normal people.”