Our Mission

Giving Hope

The United MSD Foundation was established to cure Multiple Sulfatase Deficiency (MSD) and avail our research to cure other lysosomal storage diseases.

As a rare, fatal, inherited disorder of the nervous system, MSD has no known treatment or cure. MSD research has advanced through partnerships with the MSD Action Foundation in Ireland, and Fundación Cure MSD in Argentina.

The United MSD Foundation takes direction from our Core Values:

Focus – We will focus on medical and scientific research dedicated to curing MSD as quickly as possible.

Relentlessness – We will not stop until MSD is cured.

Opportunity – We believe that every Child with MSD should have the opportunity to lead a healthy life without limitations.

Advocacy – We will increase public awareness of MSD.

Accountability – We will only fund medical research that has scientific merit.

Heroes – We are driven by the strength and courage of children with MSD and their families who are true Warriors.

National Organization for Rare Disorders Logo - United MSD FoundationThe United MSD Foundation is currently the only organization in the United States registered with the National Organization for Rare Disease (NORD) dedicated to pursuing treatment and advocacy for Multiple Sulfatase Deficiency (MSD).

NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 260 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.