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Together We Can Cure MSD

A young child with MSD named Willow laughing at Beach

Founded in 2016, United MSD Foundation is a registered 501(c)(3) nonprofit organization serving an international community of Multiple Sulfatase Deficiency families, researchers, and care providers. We exist to bring awareness to MSD, fund research toward treatment, and support families through education, resources, and community.

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Awareness

What is MSD?

Multiple Sulfatase Deficiency (MSD) is a rare genetic, progressive, neurodegenerative disease caused by the build up of cellular waste throughout the body leading to neurologic regression and multisystemic symptoms.

MSD 101
A mother and her child with MSD embracing

1 in 500,000

Individuals are estimated to be affected by MSD worldwide

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17 Countries

Represent the families we have supported since 2016

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$1.2 million

Has funded critical research projects

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The Faces of MSD

As parents you want to save your child from any harm and in this situation we are unable to do anything but sit and watch. That needs to change.

Meet Elijah

CarLeigh is a happy, high-energy toddler who loves to clap, eat bananas, dance, jump on the trampoline, and be with us, her family. While CarLeigh is not meeting the milestones for an average three-year-old, she is still a ball of love and energy.

Meet CarLeigh
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Let’s Connect

Connect with MSD families and get valuable information from medical researchers and doctors.

Family portrait with Mother, Father and 3 children outside on fall afternoon.
For Families
Presentation at Chan Zuckerberg Initiative
For Professionals