Clinical Care

Multidisciplined Approach to Care

Management of MSD is largely based on the presenting symptoms. However, the MSD child’s physician should expect the child to have multiple body systems affected, thus requiring a multidisciplinary team to provide care. Some services that might be recommended include speech, physical, and occupational therapies. To assist with developmental delays, early intervention should be recommended to families whenever possible.

MSD Guidelines

In 2018, clinical care guidelines for MSD were published. Providers should use these guidelines to ensure the MSD child is being properly monitored. We have converted these guidelines into a checklist for both providers and families, available in multiple languages. Please contact us to learn more.

Learn More

Remember, MSD is an extremely rare disease and remains largely unfamiliar to most medical practitioners. A diagnosis can take several years if the appropriate tests are not ordered.

MSD Specialists

The Foundation has compiled a list of medical centers and providers with known MSD experience. T his list is updated as new information becomes available. If you have experience with someone not on the list, please let us know.

View specialists

Let’s Connect

Connect with MSD families and get valuable information from medical researchers and doctors.

For Families

For Professionals