Partner
Organizations
Worldwide MSD Community
Since before our inception, when first connecting with Alan Finglas of MSD Action Foundation, UMSDF founder Amber Olsen knew the importance of community—of sharing information and personal experience—to the rare disease journey.
Partners & Friends
MSD Action Foundation / SavingDylan.com (Est. 2015)
Dublin, Ireland
Alan Finglas, Founder & Research Manager, MSD Parent to Dylan
Grattan Lodge, Balgriffin, Dublin 13, Ireland
info@msdactionfoundation.org
Grattan Lodge, Balgriffin, Dublin 13, Ireland
info@msdactionfoundation.org
Fundacion Cure MSD (Est. 2017)
Buenos Aires, Argentina
Sebastian Ballauz, Founder, MSD Parent to Alma
+5491136973527
unacuraparaalma@gmail.com
+5491136973527
unacuraparaalma@gmail.com
Cura MSD (Est. 2018)
Cataluna, Spain
Elisabet Peres Font, Founder, MSD Parent to Ivet
C/Sant Marc, 116, Terrace – 08224 Barcelona
info@curamsd.org
C/Sant Marc, 116, Terrace – 08224 Barcelona
info@curamsd.org
Grant Us Grace (Est. 2019)
Missouri, USA
Tonya Goodin, Founder, MSD Parent to Grant and Grace
8621S Tomlin Hill Rd., Columbia, MO 65201
573-280-5408
grantusgrace2curemsd@gmail.com
8621S Tomlin Hill Rd., Columbia, MO 65201
573-280-5408
grantusgrace2curemsd@gmail.com
strEngTHAN (Est. 2020)
Florida, USA
Melissa and Holden Duchon, MSD Parents to Ethan
10214 SW 115th Ct, Miami, FL 33176
305-319-1676
info@strengthan.org
10214 SW 115th Ct, Miami, FL 33176
305-319-1676
info@strengthan.org
Let’s Connect
Connect with MSD families and get valuable information from medical researchers and doctors.