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In Partnership, We Thrive

Save the date for the 2026 MSD Virtual Summit! This two-day, online gathering will bring together researchers, clinicians, families, advocates, and partners from around the world. Through shared knowledge, lived experience, and innovative efforts, we move closer to better care and future therapies for Multiple Sulfatase Deficiency.

In the coming weeks, we will update this page with registration details, confirmed speakers, and the full schedule for the two-day Virtual Summit. The program will center around core themes highlighted below: areas where collaboration among clinicians, researchers, families, advocates and partners is driving real progress. Because, in partnership, we thrive. Together, we can build a future where everyone affected by MSD can live without limitation.

Let’s Connect

Connect with MSD families and get valuable information from medical researchers and doctors.