Opportunities For
Researchers
Partnering with Experts
The United MSD Foundation is always striving to work with researchers to advance their studies be it as a collaborative partner or through financial support.
United MSD Foundation Biobank
In conjunction with Genetic Alliance, the United MSD Foundation houses biological specimens (blood and urine) in Fredrick, Maryland at the Precision for Medicine Biobank. We have collected and processed samples from around the world and provided them to researchers interested in identifying crucial biomarkers. If you are interested in learning more about the samples that we house or how to collaborate in the future, please contact our Patient Research Coordinator.
Partners
Patient Registry
The Patient Registry captures longitudinal health information about patient and family experiences through the use of online surveys. Utilizing the online platform, LunaDNA, families affected by MSD will be able to create accounts, share their medical records, and complete surveys. Researchers can request access to this data; upon approval, they will be given access to a virtual “Sandbox” where they can access and analyze the available de-identified information. Interested in learning more? Contact our Patient Research Coordinator.
Let’s Connect
Connect with MSD families and get valuable information from medical researchers and doctors.