
Family
FUNDs
Fundraising for the Future: How your Family Fund can support the United MSD Foundation.
If you are interested in participating in any of the following, please reach out!
Create a Family Fund
The fight against Multiple Sulfatase Deficiency (MSD) is deeply personal, driven by the hope and dedication of families just like yours. The United MSD Foundation Family Funds program provides a meaningful and powerful way to honor a loved one, channel your passion, and accelerate the mission to find a cure.
A Family Fund is a specially named fund held at the United MSD Foundation, serving as a tribute that connects your family’s journey directly to breakthrough research and essential patient support. It is the simplest and most effective way to turn your personal commitment into a lasting force for the entire MSD community.
Why Partner with the United MSD Foundation?
By establishing a Family Fund, you become a direct partner in our work, leveraging the Foundation’s established network, scientific strategy, and non-profit infrastructure.
Maximize Your Impact: Your fund will support the Foundation’s critical initiatives, including first-in-human gene therapy trials and pioneering research aimed at halting disease progression and repairing neurological damage.
Create a Lasting Legacy: Name your fund in honor or in memory of a loved one (e.g., The [Name]’s Hope Fund). This dedicated fund will serve as a perpetual testament to their life and your family’s relentless commitment to a cure.
Mobilize Your Community: Provide a clear, secure giving channel for friends and family. Your entire network can donate directly to your named fund, knowing their contributions are managed efficiently and responsibly by the Foundation.
Relief from Administration: The United MSD Foundation handles all the administrative burden—legal compliance, financial oversight, and donor receipting (tax acknowledgment letters)—freeing your family to focus solely on fundraising and awareness.
Targeted Giving: While all funds support the mission to cure MSD, you can express a preference for how the funds are used—whether it’s accelerating research or providing navigation and support to diagnosed families worldwide.
Your Fund. Real Progress.
The resources generated by your Family Fund can be invested across our three core focus areas, providing a comprehensive approach to combating MSD:
How to Establish Your Family Fund
Launching your Family Fund is a powerful step, and the United MSD Foundation is here to support you. We guide you through the initial setup, ensuring the process is efficient and tailored to your vision.
Ready to start making a difference?
Reach Out: Contact the United MSD Foundation development team to discuss your goals and choose a meaningful name for your fund.
Define the Structure: We will help you outline the scope of your fund and any specific intentions you have for its contributions.
Launch Your Fund: The Foundation will establish a dedicated online giving page for your fund, provide promotional materials, and offer coaching to help you launch successful fundraising activities (events, letter campaigns, etc.).
Make an Impact: Watch as your community’s generosity is tracked and credited to your named fund, directly building the scientific momentum for treatments while providing compassionate care and resources to the MSD community.
Contact Us & Make a Difference!
Contact Sarah Cortell Vandersypen, Executive Director, today to learn more and begin the simple process of establishing your United MSD Foundation Family Fund.
Let’s Connect
Connect with MSD families and get valuable information from medical researchers and doctors.