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Ways To Give

Fighting for a Cure

United MSD Foundation’s mission is simple: to cure MSD. Since our founding, United MSD Foundation has grown from one mother fighting for her child to a world leader among patient advocacy organizations dedicated to the treatment and cure of MSD. Thanks to dedicated and caring individuals, we have made significant progress, including funding gene therapy research, establishing the first-ever MSD Patient Registry and Biobank, developing two MSD biomarkers, and funding natural history and gene therapy toxicology studies.

This work takes a team of researchers and scientists across the world as well as a committed group of MSD families who are pushing research forward through participation.

But it also takes you.

Your generosity allows MSD research to continue to advance groundbreaking research that will lead to a cure. It also ensures that no family has to endure this devastating diagnosis alone. The United MSD Foundation is here for every family who hears the words Multiple Sulfatase Deficiency.

Your generosity will make a meaningful impact, both in advancing research and in extending critical resources to families in need. Together, we can work towards a future where MSD is no longer incurable, and no family has to endure it alone.

Let’s Connect

Connect with MSD families and get valuable information from medical researchers and doctors.